Substudy 4 was a small pilot study for a second, larger study (substudy 5) focusing on the costs and outcomes of care in the community and in long-term care facilities. In particular, it delineates the economic, social, and psychological burden borne by family members and informal caregivers when patients are in home care rather than in institutional settings. The purpose of the pilot study was to test instrumentation and determine the feasibility of data collection strategies for substudy 5. Three study sites were used: Winnipeg, rural Prince Edward Island, and London, Ontario. Information was collected both on clients and on informal caregivers through interviews and questionnaires. The pilot study enabled the research group to better refine its measurement tools, determine sufficient sample sizes, and resolve other issues that could affect the outcome of substudy 5.
This project was supported by the Health Transition Fund, which was created in 1997 to provide support for evidence-based decision-making in health care reform by supporting pilot and evaluation projects which test innovative approaches to health care delivery. The views expressed herein do no necessarily represent the official policy of federal, provincial, or territorial governments.